Meds suck

I'm sitting here with Cade while he's doing his after-nap treatments.  It's during the afternoon treatment times that I have the most "down time" if you want to call it that.  Both of the little boys are still not awake from their nap, the big kids are still at school and it seems like this is when I have the most time to think about things.  Today as I was getting everything ready for the 30 minutes - the neb cups, mask, breathing meds, chocolate milk (Cade's with meds in it), enzymes, and a snack - I thought how much his enzymes suck (I really wanted to say they are a pain in the ass, but I won't).  Ya, ya, I know, it's only 1 pill and it keeps him healthy and he would be in really bad shape without it and all that stuff, but............ for Cade it's like the size of a small boulder and in the back of my mind I have to wonder if this is going to be one of those times where it is a struggle to get him to even take it.  There have been times when we watched him put it in his mouth, take a drink and we assumed he swallowed it, only to find it in his chair with him after he has finished eating.  This 1 pill has to be taken every time he eats or drinks something.  The enzyme works for about an hour, which is fine except for times like now when he kids get home from school an hour after he has taken his pill, are eating a snack and Cade wants some too.  We don't want to give him too many enzymes in a day especially since he is on a rather high dose, for his age, anyway.  So the dilemma is, do we give him another pill or wait since we will be eating dinner soon and he will have to have one then?  This is how it kinda is throughout the day - when did he have his last enzyme?  Was it within an hour or was it longer?  Does he need another one?

Yes, I am truly thankful that Cade does have all these meds.  I couldn't (and don't want to) imagine how life would be for him if he didn't have them.  I'm just having one of those moments where I would do anything for him to not have to go through all of this.