My Biggest Fear......

 

 

I came across an article and video this morning, Raising a Family with Cystic Fibrosis.  The dad is a CF dad and pretty much summed up what I have been thinking since July 25, 2012 when I opened Cade's newborn screening letter -

              “My biggest fear is that I outlive my children – simple as that; that shouldn’t be.
               And I don’t want that to happen. That’s where it begins and ends with the fear.
               I don’t want that to happen.” - Pat Randle, CF Dad.

I don't know the guy and had never heard of him until this morning.  He said what we all think but don't want to say out loud. 

I will continue to spend my days researching and raising awareness and doing whatever I have to do until Cade is cured because he WILL outlive us.